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Global Genes Week in Rare

Date/Time: Sep 25, 2024, 08:00 AM to Sep 28, 2024, 05:00 PM

Location: Loews Kansas City Hotel


Week in RARE combines the RARE Advocacy Summit and RARE Health Equity Forum, in addition to the RARE Champions of Hope awards ceremony and annual membership meetings for Global Advocacy Alliance and RARE Corporate Alliance. This is a unique opportunity to gather and engage rare disease advocates and leaders in the same space for conversation.

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Apr 23 12:00 PM • Zoom Research and Discovery Grand Rounds: AI in Clinical & Translational Research This Research and Discovery Grand Round is Part 2 of the Spring 2026 Series on harnessing Big Data, AI and Emerging technology to advance discovery and innovation. Speaker: Dawn King, Ph.D., Director of KU Medical Center's Enhanced Artifical Intelligence Center for Human-Centered Research Apr 30 08:00 AM • Westin Crown Center, Kansas City 14th Annual Collaborative Perspectives on Addiction Conference The 14th Annual Collaborative Perspectives on Addiction Conference (CPA2026) is pleased to invite researchers, practitioners, and experts from diverse disciplines to submit proposals for our upcoming conference, focusing on the theme of "Addiction in Context: Addressing Social Determinants and Structural Drivers Through Interdisciplinary Science.” CPA2026 updates: https://addictionpsychology.org/cpa Direct questions or concerns to the Program Co-Chairs Jordan Davis (jordand@rand.org) and Alexander Sokolovsky (alexander_sokolovsky@brown.edu) May 04 09:00 AM • TBD 2026 Spring Mock Study Section Additional information will be released at a later date, including due dates and how to submit. May 04 12:30 PM • Medical Pavilion at the University of Kansas Health System 2000 Olathe BLVD, Kansas City, KS, 4th floor, Dermatology. Melanoma Monday Free Skin Screening Skin cancer check.  May 12 02:00 PM • Virtual Team Science Research and Practice: 40 years of Progress & What Next Dr. Eduardo Salas is an internationally recognized expert, researcher, and thought leader in the use of teams. He is a pioneer in the fields of teamwork, team effectiveness, team training and learning, and individual training. He helps organizations on how to foster teamwork, design and implement team training strategies, facilitate training effectiveness, manage decision-making under stress, develop performance measurement tools, and design learning environments. He will share the overarching themes that have emerged from 40+ years as a researcher in these areas. May 18 09:00 AM • Hybrid From the University of New Mexico Health Sciences CTSA: Health Experiences Research 1.0 Hybrid Training Launched in 2014, HERN is the United States chapter of DIPEx International. It is a partnership among researchers at the University of New Mexico, Oregon Health and Science University, University of Wisconsin-Madison, Johns Hopkins University, Yale University, University of Utah School of Medicine, Veterans Administration and Mount Siani School of Medicine.  Interactive sessions methodology, project development and implementation; opportunities to present your research; and networking time with peers and senior researchers.  Cost: In person: Faculty/Staff: $550; Students/Residents: $275; Virtual: Faculty/Staff: $400; Students/Residents: $200 Cancellation: Full refunds by April 30, 2026 minus processing fee. Non-refundable after April 30, 2026.  May 21 11:00 AM • Virtual World No Tobacco Day webinar hosted by the World Health Organization Action on Smoking and Health, the African American Tobacco Control Leadership Council, the CDC Foundation, and Truth Initiative host this webinar to amplify the 2026 World No Tobacco Day Theme, "Unmasking the appeal – countering nicotine and tobacco addiction." Kristy Marynak, PhD, MPP, Senior Director for Tobacco Control Initiatives at the CDC Foundation, will discuss the truth about nicotine: what science says—and what the industry isn’t telling you. Dr. Jessica Rath, Senior Vice President at Truth Initiative, will review tobacco industry manipulation tactics both branded and unbranded. And Carol McGruder, Co-Chair of the African American Tobacco Control Leadership Council, will highlight how menthol flavoring is used as an industry tactic. May 21 03:00 PM • Hybrid New Directions in Senior Care Location: (virtual option available)     Kauffman Foundation Conference Center     4801 Rockhill Road     Kansas City, MO 64110 Register for Virtual Attendance. Register for In-Person Attendance. May 28 12:00 PM • Zoom Research and Discovery Grand Rounds: AI Driven Wearable Interventions This Research and Discovery Grand Round is Part 3 of the Spring 2026 Series on harnessing Big Data, AI and Emerging technology to advance discovery and innovation. Speaker: Jeff Thompson, Ph.D., Chief Research Informatics Officer at KU Medical Center along with a panel of experts in the field. Jun 25 12:00 PM • Zoom Research and Discovery Grand Rounds: Big Data in Precision Medicine This Research and Discovery Grand Round is Part 4 of the Spring 2026 Series on harnessing Big Data, AI and Emerging technology to advance discovery and innovation. Diego Robles Mazzotti, Ph.D., Associate Professor, Medical Informatics at KU Medical Center and the All of Us Heartland Consortium Jul 16 03:00 PM • Hybrid Rural Health Reimagined Location: (virtual option available)     Kauffman Foundation Conference Center     4801 Rockhill Road     Kansas City, MO 64110 Register for Virtual Attendance. Register for In-Person Attendance. Sep 10 03:00 PM • Hybrid Moving the Needle in Maternal Care and Outcomes Location: (virtual option available)     Kauffman Foundation Conference Center     4801 Rockhill Road     Kansas City, MO 64110   Register for Virtual Attendance. Register for In-Person Attendance. Oct 09 09:00 AM • KU Edwards Campus - BEST Conference Room Heartland Association of Research Professionals Annual Conference (2026) Research Resiliency: Challenges and Adaptations in Healthcare Research The goal of the HARP conference is to provide networking and educational opportunities for research professionals across the heartland region. Past attendees have consisted of research coordinators, data scientists, principal investigators, and other research professionals from a variety of disciplines.  
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