Collaborate2Cure Series on Rare Disease

Date/Time: Jan 26, 2023, 03:00 PM to Jan 26, 2023, 05:00 PM

Location: Children's Mercy Research Institute

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On January 26, 2023, the Collaborate2Cure series on Rare Disease will embark on a year-long dialogue to showcase various national and regional speakers and stakeholders from the rare disease community. It is designed to stimulate collaboration across the KC region to solve scientific challenges facing patients, families, and caregivers impacted by rare diseases. The series will convene unique disciplines to learn about various research and clinical issues to spark innovative treatments and advocacy strategies for the rare disease community.

BioNexus KC and RareKC will co-host this series.

The State of Rare Disease
January 26, 2023 • 3:00 - 5:00 PM
Children's Mercy Research Institute, 2401 Gillham Rd, Kansas City, MO

Presentations: 3:30-4:30

Welcome, Series Overview and Deliverables
- Dennis Ridenour, CEO, BioNexus KC and Sara Hart Weir, Rare KC
Speakers
- Pediatric: Tom Curran, PhD, Executive Director and CSO, Children’s Mercy Research Institute
- Adult: Steven Stites, MD, Vice Chancellor Clinical Affairs, University of Kansas Medical Center
- Payor: Jay Bryant-Wimp, RPh, Clinical Advisor, Optum Frontier Therapies
- Patient: Kevin Wake, Patient Advocate, Uriel E. Owens Sickle Cell Disease Association of the Midwest
- Panel discussion | Moderator: Kelly Ranallo, Founder, RareKC

Join us for networking and refreshments before and after the presentations.

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