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UID:collaborate2cure-series-on-rare-disease20230126T150000@structura.com
DTSTART:20230126T150000
DTEND:20230126T170000
SUMMARY:Collaborate2Cure Series on Rare Disease
LOCATION:Children's Mercy Research Institute
DESCRIPTION:On January 26, 2023, the Collaborate2Cure series on Rare Disease will embark on a year-long dialogue to showcase various national and regional speakers and stakeholders from the rare disease community. It is designed to stimulate collaboration across the KC region to solve scientific challenges facing patients, families, and caregivers impacted by rare diseases. The series will convene unique disciplines to learn about various research and clinical issues to spark innovative treatments and advocacy strategies for the rare disease community. 

BioNexus KC and RareKC will co-host this series.


	
		
			
			The State of Rare Disease
			January 26, 2023 • 3:00 - 5:00 PM
			Children's Mercy Research Institute, 2401 Gillham Rd, Kansas City, MO
			 

			Presentations: 3:30-4:30

			
				Welcome, Series Overview and Deliverables

				
					Dennis Ridenour, CEO, BioNexus KC and Sara Hart Weir, Rare KC
				
				
				Speakers
				
					Pediatric: Tom Curran, PhD, Executive Director and CSO, Children’s Mercy Research Institute
					Adult: Steven Stites, MD, Vice Chancellor Clinical Affairs, University of Kansas Medical Center
					Payor: Jay Bryant-Wimp, RPh, Clinical Advisor, Optum Frontier Therapies
					Patient: Kevin Wake, Patient Advocate, Uriel E. Owens Sickle Cell Disease Association of the Midwest
					Panel discussion | Moderator: Kelly Ranallo, Founder, RareKC
				
				
			

			Join us for networking and refreshments before and after the presentations. 
			
		
	


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